Showing posts with label medical condition. Show all posts
Showing posts with label medical condition. Show all posts

Friday, January 24, 2014

Even YOU Can Become Disabled - Why Visitability Is Necessary


A Wheelchair Wonderland

I remember vividly a point in time where I wished desperately that the whole world was in a wheelchair so that everyone could know what my daughter had to go through just to go to someone’s home. The city of Austin, Texas is creating that world. Well, kind of.

The city council in Austin, Texas is currently deciding on new rules that could make all newly built homes wheelchair accessible. The first two drafts have already been approved so it’s looking good that this third and final draft will push through without a problem. If approved, levered door handles, light switches placed at lower heights and wide doorways will be features required on the first floors of new single-family homes and duplexes. Not widely talked about –yet – this is known as “visitability”. This is a concept in home design that would allow a person in a wheelchair that lives there or visits access the home without any problem. There are cities in the US that already have these rules in place: San Antonio, Atlanta, St. Petersburg, Fla., and Tucson, Ariz. According to the website www.visitability.org, a home is visitable when it meets the following three basic requirements:
     * At least one zero-step entrance
     * Doors with a minimum of 32-inch clearance
     * At least one bathroom on the main floor that is wheelchair accessible

Becoming Disabled

Some of you may be wondering why this is necessary. If you’re reading this and you’re not disabled then you probably don’t view this as important enough to make legal regulations over. But let’s consider that. Just because you weren’t born with a disability doesn’t mean you never will become disabled. Here are three examples you may have never thought about:

1. Old Age
Think about your (or your friends’) grandparents. Do you know any who use walkers, hearing aids, have trouble standing or reaching or bathing or cooking? Did they always have those problems? Most likely, these disabilities are of the acquired type meaning they were born without a disability but because of aging they now have difficulty with one or more activity of daily living. Oftentimes, the word “disabled” is not used when referring to senior citizens if they’ve lived independently their entire lives. But that’s exactly what they have become (and what the large majority of us will become should we be blessed enough to live into our 60’s and beyond). A home built with visitability in mind will increase the chances that a person can live on in their own home rather than being moved into a nursing facility. And by “a person” I mean YOU!

2. Illness
There are also people who are fine into their 30’s and 40’s and then become ill or develop medical conditions which limit their ability to be as independent as they have always been. Multiple Sclerosis (MS) and Lou Gehrig’s disease (ALS) typically begin to appear in adults around this age and are debilitating diseases which cause severe physical disabilities. Don’t think this will happen to you? MS tends to appear between the ages of 20 and 40 in otherwise normally developing people. 15 new cases of ALS are diagnosed daily in the US; 60% are men and 93% are Caucasian.

Arthritis is another large culprit in this area. According to the CDC, nearly two-thirds of people with arthritis are younger than 65. It’s the most common cause of disability and limits or prevents over 21 million Americans from being able to climb stairs, walk more than short distances or work. It’s more common in women than men but affects all racial and ethnic groups. One study shows that the risk of developing osteoarthritis in your knee that causes pain is 45% and estimates show that 57% of people who have had a knee injury or are obese will develop osteoarthritis. That’s about half of you reading this! 

Of course, there are countless other autoimmune & nervous, central and respiratory diseases and musculo-skeletal disorders that can strike at any time and cause disability in an adult who has otherwise lived a healthy and independent life.

3. Accidents
What about those that are in accidents and become paralyzed or receive a traumatic brain injury (TBI)? Have you seen the show Push GirlsEvery one of those women was in an accident that paralyzed them. Any of these situations can happen to each and every one of you. Sounds bleak, I know but imagine what your life would be like if you couldn’t enjoy the little things you do now, like going to your sister’s house for dinner or to your friend’s for girls night as you always have because your wheelchair can’t go up the one step leading into their home or your wheelchair can’t get through the doorway into the living room? Now imagine if every new home built allowed you to come and go as you please, without even a thought?

Disabled America

According to the US census, 1 in 5 citizens has at least one disability and the number is set to grow as baby boomers age. Just over 1 in 4 American citizens in their 20’s will become disabled before they retire. But the “that can’t happen to me” mentality keeps most of us from worrying about our futures. 64% of wage earners believe they have a 2% or less chance of being disabled for 3 months or more during their working career. The actual odds for a worker entering the workforce today are about 25%! 

Maybe it’s time you start thinking about what could happen to you or your spouse now and planning ahead. Don’t you think having a home already set up to visitability standards would make your life easier in the long run? I hope to see this concept become the standard in my lifetime for all our sakes.

Would you like to know what the probability of you becoming disabled is? Check out the Personal Disability Quotient calculator here

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CHECK OUT THIS POST ON 1800WHEELCHAIR.COM !
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Sunday, September 2, 2012

The Flu and You - 5 Tips On Staying Healthy


Flu season is upon us! OK, maybe I’m a little late with my announcement but it’s not too late to start thinking about it. According to the CDC (Center for Disease Control) the season can begin as early as October and end as late as May. There’s no way to tell when it will start, what viruses will be spreading or how long the epidemic will last. But we can take steps to curb and hopefully stop the virus from spreading within our own households.
Those of us who are immune-compromised or have children with disabilities are more susceptible to catching a virus so we must be extra cautious. The CDC did a study on the 2009 H1N1 flu outbreak and it was found that a higher number of kids with neurological conditions died from this epidemic than kids without. In fact, 68% of those deaths had an underlying medical condition; 64% of that group had a neurologic disorder! I am not trying to create a panic but I do think it’s extremely important to be educated and informed. Here are 5 tips on how you can keep your home as healthy as possible that you may or may not have heard before:

1. WASH YOUR HANDS!
Yes, the simplest things sometimes are the most important things. In my home, the main entrance is through the kitchen and as soon as we walk in the door, we wash our hands. No matter where we’ve just come from – the grocery store, a relative’s home, school, work – first we wash our hands. Anybody who comes over, I ask the same from them or offer antiseptic hand sanitizer that I keep right next to the soap. I’ve had a couple people say, “Oh, I washed my hands just before I left my house”. Really? That’s great. And after you washed them you touched your door knobs, car keys, car door & interior, and God knows what else...So yeah, please either wash or disinfect them now that you’ve made through my threshold, thanks!

2. USE YOUR ELBOW!
Well, actually the inside of your elbow a.k.a. the crook of your arm.  When you cough or sneeze, covering your mouth and nose with your hand is fine if you’re going to wash it right away but chances are you’re not. What you’re probably going to do is touch your phone, computer mouse, remote, drawer handle, door knob or shake someone’s hand. Then guess what? You’ve passed your germs on to someone else. I’ve never seen anybody open a door or change the channel with the bend in their arm. If you do, please take a picture and share that; I’d love to see it.

3. WIPE! WIPE! WIPE!
There have been studies that show remote controls are the germiest items in hotel rooms. I’m willing to bet your remote controls at home have never been cleaned. Neither have your cell phones, home phones or computer mouse. I take disinfectant wipes (Lysol makes them but there are other no frills brands that have the same properties and work just as well) and clean everything. I just go room to room and wipe down the things that we touch the most throughout the day. The electronic items I mentioned above; light switches; door knobs; cabinet handles; drawer pulls; computer key boards; video game controls. I’ve gotten into such a frenzy that before I realized it, the cats had been sanitized, too. They hated it but they did look pretty funny with their fur all stuck together like that. Ah, good times.

4. QUARANTINE!
After we found out my son doesn’t have half of his immune system I bought face masks so that if anybody in our immediate family was sick, we could protect him from our germs. We try to stay away from the others for the first couple of days until the antibiotics kick in. And if someone from the outside world is sick, they get locked out! Even the slightest hint of a possible cold is enough to block access to our home. Sorry, we love you, but ya gots to go!

5. VACCINATE!
This is controversial. I know there are many people who feel this will only get you sick, whether it be with the flu, Autism or other neurological diseases. Let me just give you the facts, as per the CDC, then you can make up your own mind.

Who should be vaccinated? Everyone, but especially people at high risk like children over 6 months; those with certain medical conditions that make their immune systems weaker like those with asthma, diabetes and chronic lung disease; pregnant women; and people over 65. Also, those of us who care for people who fall into this high risk category should be vaccinated.

When should we vaccinate? As soon as the vaccines become available so that a flu epidemic doesn’t have a chance to grow. It takes about two weeks for the vaccine to kick in so waiting until the virus is in full effect to get the vaccine is not ideal. You should get it when it becomes available so you’re protected at the right time.

Where do I get the vaccine? If you are being followed by a regular physician then that is where you should go. If you don’t have a doctor you can go to http://flushot.healthmap.org/ to find a location by you. There are also links on the main page to information on the different types of vaccines available.

Make sure that whoever is giving you the vaccine knows your medical history. For instance, the nasal mist vaccine is not safe for the groups I mentioned above. People with immune deficiencies probably wouldn’t be good candidates for any type of vaccine, either. I’m not doctor so please, PLEASE speak to a medical professional about all your medical history before making your final decision. You can find more about the flu and vaccines http://www.cdc.gov/flu/.